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About Us

We advocate, support, network, and help those with EDS navigate the medical system during crisis situations.

Learn more about EDS Today  

Types of EDS

Each type of EDS is complex, unique, and deserves specific treatment and medical attention. Although some types of EDS are more rare or considered deadly, all should be taken extremely seriously.

Learn about the Types of EDS  

Research

Having up to date research is vital for medical professionals that are assisting, diagnosing, and treating those with EDS.

Learn more about current research  

 

Frequently Asked Questions

Browse through some of the questions below for a quick answer:


Ehlers-Danlos Syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders characterized by articular hypermobility, skin extensibility and tissue fragility. There are six major types of EDS. The different types of EDS are classified according distinct features. Find out more about EDS.

Please e-mail us at info@edstoday.org – If the situation is Urgent, please put that in the subject of the message.


Many assume that EDS is rare, however it is much more common than medical professionals believe. Most simply do not know the symptoms or what they are looking for when diagnosing EDS. Learn more about the types of EDS.


Our online community is through our EDS Today Facebook Page. There we share current articles, and connect you with others who have or are affected by EDS.


If your doctor does not know much about EDS, you can direct your doctor to the medical information or articles that can help you specifically. If the physician is not willing to research, consult with more experienced doctors, or learn more about EDS, then it is in your best interest to find a new doctor.


You can receive a medical diagnosis by a medical professional or geneticist who is knowledgable in connective tissue disorders. You can also be referred to other specialists for further testing.


Each type presents different diagnostic criteria, however the three most common symptoms are skin issues (elasticity, bruising, scarring, translucent), hypermobility (joint), and vascular blood vessel internal organ fragility. Find out more about EDS and the specific types with symptoms. 


Ehlers-Danlos Syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders characterized by articular hypermobility, skin extensibility and tissue fragility. There are six major types of EDS. The different types of EDS are classified according distinct features.

 

Classical Type

Hypermobile Type

Vascular Type

Kyphoscoliosis Type

Arthrochalasia Type

Dermatosparaxis Type

More Resources