April 19, 2014

 

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Attention: Important News

The National Institute of Health (NIH/NIA) has halted the only national study on rare connective tissue disorders/diseases including Ehlers-Danlos, Fibromuscular Dysplasia, Marfans, Sticklers, familial aneurysms and other related disorders. These disorders/diseases result in severe disability and even death for those afflicted. It represented the only HOPE thousands of families had in finding the cause and cure for these rare disorders/ diseases. We are asking the NIH/NIA to restore the 10-year study. Please take a moment to sign this petition and share it with your family and friends.

THANK YOU!!!

Please click on the picture below to go directly to the petition

change.org

 

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NATIONAL EDS AWARENESS ON KATIE

 

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