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Spring-Summer 2000
Fall-Winter 2000
Spring-Summer 2001
Fall-Winter 2001
Spring-Summer 2002
Fall-Winter 2002
Spring-Summer 2003
Fall-Winter 2003
Spring-Summer 2004
Fall-Winter 2004
Spring-Summer 2005
Fall-Winter 2005
Spring-Summer 2006
Fall-Winter 2006

 

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Newsletter

EDS Today is a newsletter for, by, and about people with EDS, their families, and the medical community.


Past Issues:

EDS Today is ending its sixth year with the release of the 12th issue in October 2005. Click an issue below to view its contents.

Fall-Winter 2005

Lead Article: Clinical Report: Tenascin-X deficiency in autosomal recessive Ehlers-Danlos syndrome by Noralane M. Lindor and James Bristow

Featured Topic: Celebration of Life

Spring-Summer 2005

Lead Article: Labor Analgesia for the Parturient With an Uncommon Disorder: A Common Dilemma in the Delivery Suite By Kuczkowski, Krzysztof M. MD, Assistant Clinical Professor of Anesthesiology and Reproductive Medicine and Director, Obstetric Anesthesia, Departments of Anesthesiology and Reproductive Medicine, University of California, San Diego, California

Featured Topic: Pregnancy and EDS

Fall-Winter 2004

Lead Article: Connective tissue disorders with spontaneous spinal cerebrospinal fluid leaks and intracranial hypotension: a prospective study. Schievink WI, Gordon OK, Tourje J. Maxine Dunitz Neurosurgical Institute, Cedars-Sinai Medical Center, Los Angeles, California 90048, USA.

Featured Topic: Driving and EDS

Spring-Summer 2004

Lead Article: Use of porcine small intestinal submucosa in Ehlers-Danlos Syndrome: Type IV Wiedeman JE, Ritter EM Am Surg 2003; May 69, (5): 424-6

Featured Topic: The Decision Whether or Not to Have Children

Fall-Winter 2003

Lead Article: Survival of an Aortic Trauma Patient with Ehlers-Danlos Syndrome type IV: A Case Report by Levine MP, Danville Vascular Surgery, Danville, VA 24541, J Vasc Surg 2000 Dec; 32(6):1219-21.

Featured Topic: Depression and EDS

Spring-Summer 2003

Lead Article: Urinary incontinence and pelvic organ prolapse in women with Marfan or Ehlers-Danlos syndrome by Carley ME, Schaffer J; Department of Obstetrics and Gynecology, University of Texas Southwestern Medical Center, USA.

Featured Topic: Gardening and EDS

Special Feature: EDS Presentation at the Western Social Science Association's (WSSA) 45th Annual Conference.

Fall-Winter 2002

Lead Article: Prevalence of Aortic Root Dilation in the Ehlers-Danlos Syndrome by Wenstrup RJ, Meyer RA, Lyle JS, Hoechstetter L, Rose PS, Levy HP, Francomano CA.

Featured Topic: Wheelchairs and Scooters

Spring-Summer 2002

Lead Article: Oral Manifestations of Ehlers-Danlos Syndrome by Yves Létourneau, DMD; Rénald Pérusse, DMD, MD; and Hélène Buithieu, DMD, MSD.

Featured Topic: EDS and Exercise

Fall-Winter 2001

Lead Article: The Prevalence of Non-Surgical Complications in the Ehlers-Danlos Syndrome by Pamela Popken-Harris, Ph.D.; Scott Ketover, M.D.; and Mary Ella Pierpont, M.D., Ph.D; David F. Hickok.

Featured Topic: EDS and Employment: Job Hunting.

Spring-Summer 2001

Lead Article: Bone Density in Ehlers-Danlos Syndrome by L. Carbone, F.A. Tylavsky, A.J. Bush, W. Koo, E. Orwoll, and S. Cheng.

Featured Topic: EDS and Travel

Fall-Winter 2000

Lead Article: Orthostatic Intolerance and Chronic Fatigue Syndrome Associated with Ehlers-Danlos Syndrome by Peter C. Rowe; Dianna F. Barron, MS; Hugh Calkins, MD; Irene H. Maumenee, MD; Patrick Y. Tong, MD, PhD; and Michael T. Geraghty, MB, MRCPI. 

Featured Topic: EDS and Employment: Job Accommodations

This issue is sold out.  You may view it online here.

Spring-Summer 2000

Lead Article: "GI Manifestations of Ehlers-Danlos Syndrome" by Jeffrey A. Solomon, MD; Lisa Abrams, MD, and Gary R. Lichtenstein, MD.

Featured Topic: EDS and Education

This issue is sold out.  You may view it online here.



 
This Issue
Lead Article: Clinical Report: Tenascin-X Deficiency in Autosomal
Recessive Ehlers–Danlos Syndrome

Featured Topic: Celebration of Life

 

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