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Newsletter EDS Today is a newsletter for, by, and about people with EDS, their families, and the medical community. Past Issues:EDS Today is ending its sixth year with the release of the 12th issue in October 2005. Click an issue below to view its contents. Fall-Winter 2005Lead Article: Clinical Report: Tenascin-X deficiency in autosomal recessive Ehlers-Danlos syndrome by Noralane M. Lindor and James Bristow Featured Topic: Celebration of Life Spring-Summer 2005Lead Article: Labor Analgesia for the Parturient With an Uncommon Disorder: A Common Dilemma in the Delivery Suite By Kuczkowski, Krzysztof M. MD, Assistant Clinical Professor of Anesthesiology and Reproductive Medicine and Director, Obstetric Anesthesia, Departments of Anesthesiology and Reproductive Medicine, University of California, San Diego, California Featured Topic: Pregnancy and EDS Fall-Winter 2004Lead Article: Connective tissue disorders with spontaneous spinal cerebrospinal fluid leaks and intracranial hypotension: a prospective study. Schievink WI, Gordon OK, Tourje J. Maxine Dunitz Neurosurgical Institute, Cedars-Sinai Medical Center, Los Angeles, California 90048, USA. Featured Topic: Driving and EDS Spring-Summer 2004Lead Article: Use of porcine small intestinal submucosa in Ehlers-Danlos Syndrome: Type IV Wiedeman JE, Ritter EM Am Surg 2003; May 69, (5): 424-6 Featured Topic: The Decision Whether or Not to Have Children Fall-Winter 2003Lead Article: Survival of an Aortic Trauma Patient with Ehlers-Danlos Syndrome type IV: A Case Report by Levine MP, Danville Vascular Surgery, Danville, VA 24541, J Vasc Surg 2000 Dec; 32(6):1219-21. Featured Topic: Depression and EDS Spring-Summer 2003Lead Article: Urinary incontinence and pelvic organ prolapse in women with Marfan or Ehlers-Danlos syndrome by Carley ME, Schaffer J; Department of Obstetrics and Gynecology, University of Texas Southwestern Medical Center, USA. Featured Topic: Gardening and EDS Special Feature: EDS Presentation at the Western Social Science Association's (WSSA) 45th Annual Conference. Fall-Winter 2002Lead Article: Prevalence of Aortic Root Dilation in the Ehlers-Danlos Syndrome by Wenstrup RJ, Meyer RA, Lyle JS, Hoechstetter L, Rose PS, Levy HP, Francomano CA. Featured Topic: Wheelchairs and Scooters Spring-Summer 2002Lead Article: Oral Manifestations of Ehlers-Danlos Syndrome by Yves Létourneau, DMD; Rénald Pérusse, DMD, MD; and Hélène Buithieu, DMD, MSD. Featured Topic: EDS and Exercise Fall-Winter 2001Lead Article: The Prevalence of Non-Surgical Complications in the Ehlers-Danlos Syndrome by Pamela Popken-Harris, Ph.D.; Scott Ketover, M.D.; and Mary Ella Pierpont, M.D., Ph.D; David F. Hickok. Featured Topic: EDS and Employment: Job Hunting. Spring-Summer 2001Lead Article: Bone Density in Ehlers-Danlos Syndrome by L. Carbone, F.A. Tylavsky, A.J. Bush, W. Koo, E. Orwoll, and S. Cheng. Featured Topic: EDS and Travel Fall-Winter 2000Lead Article: Orthostatic Intolerance and Chronic Fatigue Syndrome Associated with Ehlers-Danlos Syndrome by Peter C. Rowe; Dianna F. Barron, MS; Hugh Calkins, MD; Irene H. Maumenee, MD; Patrick Y. Tong, MD, PhD; and Michael T. Geraghty, MB, MRCPI. Featured Topic: EDS and Employment: Job Accommodations This issue is sold out. You may view it online here. Spring-Summer 2000Lead Article: "GI Manifestations of Ehlers-Danlos Syndrome" by Jeffrey A. Solomon, MD; Lisa Abrams, MD, and Gary R. Lichtenstein, MD. Featured Topic: EDS and Education This issue is sold out. You may view it online here. |
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